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EDS Network of Excellence

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Connected Health Alliance has been formally recognised as an Ehlers-Danlos Society Network of Excellence

 

Physiotherapist Nicole Frost, Dietitian Savita Sandhu, and GP Megan Thomas founded this clinical network to provide coordinated multidisciplinary care for people living with EDS/HSD and related conditions. 

 

As one of 38 Centres and Networks of Excellence globally, the network provides collaborative multidisciplinary patient care to improve individual outcomes, increase access to quality care, perform clinical research, and deliver medical education for the EDS community and those that care for them. 

 

We regularly engage in case conferences and provide peer support, consultation advice, and education for clinicians working in this space. 

 

Patients are welcome to access care with any one or all of the clinicians in the network. Once a patient is under the care of one network member, with their consent, health information can be shared between network clinicians to facilitate care. 

 

Clinicals are encouraged to contact us if interested in networking or improving knowledge in the management of EDS and related conditions. 

 

We look forward to collaborating with our international colleagues in other Centres & Networks of Excellence.

Nicole Frost

(she/her)

Physiotherapist

Flex-Ability Physio

flexabilityphysio.com.au
info@flexabilityphysio.com.au
0451 643 346

Dharawal Country

Shop 1 63 Keira St, Wollongong NSW 2500

74 Park Rd, Bulli NSW 2516

Savita Sandhu

(she/her)

Dietitian

Savvy Dietetics

savvydietetics.com.au

admin@savvydietetics.com.au

@hypermobility.dietitian

@savvydietetics

Level 1/103 Sippy Downs Drive, 

Sippy Downs QLD 4556

(Telehealth) 

(they/she)

General Practitioner

Ochre Medical Centre Wollongong

Megan Thomas

drmeganthomas.com.au

wollongong.admin@ochrehealth.com.au

(02) 4276 7000

Dharawal Country

Level 1/51 Crown Street,

Wollongong NSW 2500

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